You can’t clean with oven mitts on

“I was a slob,” I said, “I knew the drawer of the dresser was half open and I couldn’t close it. It must take nothing to close it, but I couldn’t. So it would be half-open for weeks, months.”

Mia’s younger sister, Norma, has been suffering Depression on and off for a while and occasionally locks herself in. Mia was planning to visit her parents and to stay at her sister’s place. “What should I do to help her?” she asked. She knows I have a clinical Depression and often asks advice from me for her sister. Mia is that kind of person who always tries to offer solutions to “problems,” to fix.

“I think I should tell her to stop taking medications,” she said.

“NOOOOO!” I said. “That’s the worst thing for a Depressed person!”

At one point, I felt so great and I stopped taking SSRI without consulting my shrink. (My shrink thought I had a hypomania episode.) I quickly fell into a state of Major Depression and didn’t go out of my apartment (except for bare necessities. I’m not agoraphobic. I just didn’t have the will to move.) During the three months, I was diagnosed with a variety of mood disorders and prescribed different medications, which made my condition much worse. Nothing stuck, well, except for the original straight forward SSRI. Eventually I came out of Depression organically and since then I’ve been on the same SSRI, currently with a minimal dosage.

“I take it for the rest of my life. I can’t risk having another episode,” I said. “It’s like you have a bad eye sight. You need to wear contact lenses just for functioning normally. Nobody tells you you shouldn’t wear contact lenses. You might fall into a manhole.”

“My sister doesn’t answer our calls, doesn’t respond to texts. We are sure she has read our messages… My elder sister thinks Norma is irresponsible. She doesn’t even care how our parents are doing..,” Mia said.

“It’s not that she won’t. I she can’t. Any contacts from others are threatening. When you have a migraine attack, any noises, any flash of lights would hurt badly. Phone calls and messages are like that. Especially messages to blame her or tell her to do something,” I explained. When I was depressed, every time I got a message, I felt like I heard a gun shot. Mia’s family bombards Norma with messages. “That’s the worst thing. I would feel like I want to cover myself with a blanket, in a fetal position,” I said.

“So what should we do?”

“Is she still seeing her psychiatrist?”

“I think she is,” Mia said.

“If so, just let her know you are there for her when she is ready to come out of the cave. Just send a message saying that you are thinking about her.”

Every time I talk to Mia about Depression, I am made to be aware how little “normal” people know how it feels. Many people around me have Depression with varying degree and we don’t have to explain to each other. We speak the same language of pain. It’s refreshing to realize it is not a universal state of being.

So I explained how I am when I am depressed.

“Norma is like that. She used to be very neat and tidy. But last time I visited her, her apartment was in a mess. She left dirty dishes in the kitchen sink. I thought she became lazy,” Mia said.

“It’s not that she is lazy. Depression is like having oven mitts on. It becomes very difficult to do anything with oven mitts on. Without them, it’s nothing to pick up a piece of scrap paper from the floor. With them, it takes tremendous time and energy just to do that. We see it and we know it’s there and we don’t have energy to pick it up. Then another piece of scrap falls on it, and another… Eventually we get buried in trash and can’t even move. That’s how Depression feels like.”

I don’t know if Mia understands. It’s damn difficult to clean with oven mitts on. So be compassionate to yourself. You are not lazy.

Do I Want to See Tomorrow?

The Diving Bell and the Butterfly is a cruel film.

If I should get totally paralyzed and lose my independence, do I want to live? If I have a choice, what would I do? I thought it was no brainer. I would certainly choose to end my life.

Then, my friend, Maria, was diagnosed with ALS. It is a cruel disease. She had been independent and lived alone. She didn’t have close family except for her elderly mother. She lost her mobility quickly and became dependent on friends. Within 6 months, she was admitted in a hospital and had to make a decision. She had to choose. If she chooses life prolonging measures, she would be bed-ridden for the rest of her life, which she wouldn’t know how long, and would have to depend on public assistance. She wouldn’t be able to move, eat, nor talk. She would have to wear a diaper, breathe through a respirator, be fed via a gastrostomy feeding tube… All of us, members of volunteer care team of her friends, thought it was no brainer. Nobody would be able to take care of her forever. One of her friends had a mother with ALS. She begged her mother to choose to live even in locked-in condition and she now regretted that. It’s cruel, she said.

Maria couldn’t make a choice for a long time. Eventually, she chose not to. She was admitted to a hospice and passed away peacefully in a couple of weeks. (So I was told.)

It’s no brainer, isn’t it?

It was until I heard a story about a nurse. I don’t remember where I heard or read, but it totally changed my perspective. The story was told by a husband of a nurse, who became paralyzed or immobile. When she was healthy, she had always told her family she would choose not to receive any life-prolonging measures.

She once happened to be at the scene of a serious accident. The injured person needed medical attention. As a nurse, she could tell he would surely be fully paralyzed, worse would stay in coma, or brain-damaged, and for a moment she hesitated to give an assistance to save the life. Of course, as a nurse, she provided necessary help and that person lived, with the predicted consequence. Since then she thought about her moment of choice again and again, and she concluded that she wouldn’t want to live in that condition.

So when it was her turn to choose, her husband and her children were sure that she would say no to life prolonging measures. She didn’t and they were surprised. They respected her choice and took care of her for the next several months.

Then, one day, finally she said it was enough.

What her husband said hit me hard. It’s not a question of if you want to live. It’s a question of if you want to see tomorrow. It’s not that she wanted to live in that state of being for the rest of her life. She just wanted to see tomorrow. She wanted to see her husband and her children smile tomorrow. She wanted to see the sun rise tomorrow.. She wanted to feel the air, she wanted smell the rain, she wanted to feel the warmth of sun, tomorrow.

Do I want to see tomorrow?

When I am seriously/clinically depressed, tomorrow does not exist. I am in a timeless state of pain. I become pain. I desperately search for the way to stop the pain, which lasts forever, because time stops when I am in major depression. We only are in now and here in hell. (That’s quite zen, isn’t it? ) So only thing I can think of is how to stop being myself. A depressed person doesn’t have tomorrow. That’s the tragedy.

So I constantly ask myself, ‘Do I want to see tomorrow?” And I am glad my answer was yes yesterday.