Giant Anteater

My high school best friend recommended me to watch a Japanese drama series, titled Brush Up Life. It is a story of a young woman, who suddenly died in a freak accident. She arrived at the reception desk of the “upstairs” office. A clerk at the desk told her she was assigned to re-incarnate as a giant anteater. She refused to be reborn as a giant anteater and asked the alternative option. The clerk told her that she could redo her life from the birth with her current knowledge and consciousness. The woman chose to start over and changed her life as she went. To make a long story short, every time she started over, something didn’t work and she died. So she kept going back to the start. Eventually she got the result she wanted (she saved her friends’ life).

My friend asked me if I could start over with current consciousness intact, what would I do. I thought about changing this and that. I would be on SSRI as soon as it’s available–I wasn’t diagnosed until in late 30s and I had developed a basketful of disorders. I would focus on physical fitness –I had eating disorder and was out of shape, a heavy smoker with alcohol dependency. I would move to the U.S. as soon as possible–I moved here in my late 20s and didn’t know my old country’s restrictive culture had traumatized me. I would study harder to get in a medical school –I applied for but wasn’t accepted and instead went to study liberal arts.

Then I realized I would be born into the same family and would have to do it all over again. The heroine of the drama has a “normal enough” and functional enough family. She tries to change things to save others. I can’t change my dysfunctional family. I can’t change how my parents deal with me. I would be born into the same family with all the pain, fear, shame, and anger. No. I would rather be a Giant Anteater. It would be much better.

My friend said she wanted to change one event, which traumatized and defined her life. Her parents moved from a metropolitan area to a rural city due to her father’s job and she was transferred from a private school in a large city to a local public middle school in a pretty tough district, where she was bullied as an outsider. She still can’t get over the trauma. She is now a professor of psychiatry at a local medical school, established and lives in a large house. She is married, has two sons, and they both are well-respected medical doctors. She has grandchildren, who live in the same city. I am freelancing, living in a small apartment with an old dog. I’m divorced with no children. From outside, she seems to have a good enough life. Still, she wanted to change.

I’ve been thinking about starting over, but every time I think of it, I end up choosing a giant anteater. I had a volatile life and I wish I could choose differently here and there, but if I changed any event I wouldn’t be able to be here. Every mistake I made, every bad choice I made, it was a ferry to carry me here and now. I have realized I am very content and happy with who I am now.

I just spend much of my life in constant stormy weather, hanging onto whatever I could to survive. And the deadly wind and current pushed the boats, ferry, or sometimes just a wooden lifesaver to where I am now.

So it’s possible to make peace with your life. I never expected to have this calm ordinary days at the end. (Of course, I spent large sum of money and time on this and that therapy.)

Father’s Daughter

If by chance I talk a little wild, forgive me; I had it from my father.

— HENRY VIII, ACT 1 SCENE 4

My childhood home was not a happy place. I didn’t know how being loved felt like. My younger brother told me once he made his presence as sparse as possible to avoid unpleasant encounters, well, mostly with our father. He also told me he had never felt loved by our father. When he was a pre-teen boy, he was always attached to our mother, like a baby monkey, while I don’t remember my mother’s touch. I had never felt loved by her, either.

My parents fed, clothed, and provided a bed and more than enough schooling. So I wasn’t neglected and was physically well cared for.

After multiple of failed relationships, I realized I didn’t know how love feels like. I didn’t have felt sense or reference point of being loved. I still don’t grasp the idea of being loved for just being me. I have to be needed and useful for the other person to be loved. That’s my false belief. Becoming aware of it was a great step.

My father passed away about 10 years ago after suffering Alzheimer’s disease. He was diagnosed with type 2 diabetes in early 30s and he was insulin dependent for most of my life. His father and his older sister died young from complication of diabetes. There are many diabetics in his family.

After more than half a century of dodging genetic bullets, I was diagnosed with type 2 diabetes and since I can’t take medications due to a severe and weird side effect from raised insulin level, I have been controlling it by diet and exercise only. Currently I wear CGM (continuous glucose monitor) and I finally understand what my father was going through.

I remember he said that he never enjoyed eating. He considered it as a bitter medicine. Even though he was on insulin, he was on tight calorie deficient diet. Our family never enjoyed dining out because of his diet restrictions. I always thought I didn’t want to be like him. So I enjoyed eating a lot. Now I am on a very strict diet. I can’t eat anything which I used to love–ice cream, cheesecakes, chocolates, sweet fruits, pasta, rice, pancakes… I don’t enjoy eating out with friends, because I can’t eat most of what they eat. I’ve learned that my blood glucose level dictates my moods. My father’s diet was not as scientific as mine. It was just a guess work and he was so disciplined. He needed to if he wanted to live. Now I am also disciplined regarding what I eat because I want to function.

It also dawned on me that my father must have experienced no felt sense of love. He used to say his mother, my grandmother, had loved his older brother, but never loved him. He didn’t know how love feels like. I had never felt sense of love from my grandmother, either. She cared for me when I was a little girl, but I didn’t get the sense of love. It didn’t start with me. And if you have not felt loved by your parents, it’s almost impossible to love yourself. I used to hate myself.

Fortunately my dogs taught me how loving and being loved feels like in my body. I remember my father used to take home a puppy and took care of it. The dog might have been the only thing he could feel love.

I don’t have children and it’s a good thing. Neither my brother. At least it stops with us.

If your family is loving, make sure to teach your daughters and sons to stay away from those who don’t know love. They could often be very attractive in a way only damaged people could be.

Savasana

I am not writing an anatomy book, nor a dissection manual, though I do use anatomical terms when they’re clearer than everyday language. This isn’t a book about scientific knowledge. If you’re looking for detailed anatomical information, there are plenty of great books to choose from. This is simply the story of my personal experience in dissection lab, facing cadaver, and how that experience has shaped my perception of who I am and how I relate to everything—especially my body, in this lifetime.

I once read about a meditation technique where you lie on your back and imagine your body gradually decomposing until it becomes a skeleton. I also learned that in Buddhism there is a practice called  Charnel Ground meditation, where you observes your body from the inside and outside while watching a real corpse decay. I found it intriguing, interpreting it as training to recognize that all material existence—including our own bodies—is just a mere fleeting phenomenon—no different from a decaying corpse. 

In Japan, we have kusozu, a traditional set of painting depicting nine stages of a body’s decomposition. It’s our version of memento mori. The paintings show the slow decay of a beautiful woman’s body, eaten by animals, reclaimed by nature, until it’s reduced to dry, white bones scattered on the ground. It’s a reminder that my body, too, is impermanent and transient.

When we experience unbearable trauma, our consciousness may dissociate from our body to protect us. The body becomes an object that performs a specific function, separated from the ”I” consciousness.  When I had sessions with a Zen psychology therapist, he often asked, “What do you feel in your body?”  Each time, I would look up at the ceiling, glance around the room, and search for the answer outside of myself. “Can you feel your feet on the floor?” he asked. While I could physically sense my feet touching the ground, that sensation felt completely disconnected from what I was feeling mentally.

I had little understanding of my own body. Even when I meditated on a corpse, I struggled to visualize it clearly.  With no conscious connection to my body, the corpse quickly became a mere abstraction of bones. I couldn’t grasp how complex and delicate the human body was, nor how it was related to my very existence.

Through gross anatomy training, I gradually restored the connection between myself and my body. Each time I stood at the dissection table, it felt as though I was slowly reclaiming my humanity. It has been more than ten years since I was initiated into human dissection, and I’ve spent over 1,500 hours in dissection labs. Now attending an annual dissection workshop feels like a Zen practitioner returning to the temple—a form of spiritual practice. It prepares me for the reality of death and dying, and reminds me of the importance of living fully in the present moment. 

In yoga, Savasana is the pose where you lie on your back, imitating a corpse. When we approach a dissection table in the lab, we face a donated body quietly resting in Savasana pose—the final posture we will all eventually take. 

Evanescent

“Count to 20,” the anesthetist said. One, two, three, four and I was out. After several hours, I guess, I slowly came back in the recovery room.

It was the most peaceful moment of my life. I was not there.

It is not accurate. The subject, “I,” wasn’t there for several hours. And I recognized the fact that I didn’t exist. No dream, no nightmare, no nothing.

My then boyfriend was waiting for me to wake up in the recovery room. The subject, “I,” slowly started to focus, still feeling groggy and peaceful. I wanted to stay there longer, where no subject “I” was. It was just a simple biopsy operation for breast cancer.

Then, sudden commotion was heard. The door to the recovery room slide open and EMS personnels rushed in. Another door to the operation area slide open.

An old man in the waiting room was panic-stricken and was trying to figure out what was happening on the other side of the door. A medical personnel was explaining why EMS was called in. They didn’t have the equipments to deal with the specific kind of medical emergency the man’s wife was in.

My then boyfriend was in shock. He had been waiting in the same room with the old man for the last couple of hours. “That man must have had coffee as usual this morning with his wife before they came to the hospital. He didn’t think it could be the last time…,” he said. I don’t know what happened to the wife.

Life is evanescent. It could have been me, who didn’t come back. And it’s not bad not to be. I am not afraid of dying and I want to live fully while I am here, until there comes the time of no dream, no nightmare, no “I.”

It’s not bad at all.

Trauma Walking

The young woman walked straight to me and introduced herself. “Hi. I’m a survivor,” she said. “Hi,” I said.

It wasn’t a meeting for survivors of any kind. It was just a shamanistic drumming circle gathering. I was in a process of healing journey and was trying out many modalities. At that time, I was highly sensitive to other people’s emotional state and somehow my attention was habitually drawn to traumatized people’s energy. Even before she talked to me, I sensed a tightly wound vortex with thousands of black birds swarming against the dark sky and the vortex was walking toward me.

No, I don’t want to be sucked in that, I thought.

I was taken aback that the woman introduced herself to a total stranger as a survivor. I don’t remember if she said what kind of survivor she was. However, my mind interpreted as a child sexual abuse survivor. The fact she identified herself as a survivor made me think hard. She had chosen that word to define her state of being.

During the drumming, my attention was relentlessly drawn to the woman. No, I don’t want to be sucked in that, I thought again. I could sense that she was looking for a “hook” in people around her. She was looking for a survivor to share the vortex with.

After the gathering, I told my friend about the woman and asked, “Did I look like that?”

Do I look like that? Is a survivor my identity? Does that word represents my entire state of being? I had to think hard because I saw myself in her. Trauma walking, vulnerable and dangerous at the same time.

When there are predators outside of the room, we need to survive. Our sympathetic nervous system needs to be on high alert, like a tightly wound vortex. Once the predators outside of the room leave, we can unwind (deactivate) the sympathetic nervous system. For some of us, the predator is inside the room. We carry the predator with us.

After decades of therapy and numerous healing works, I don’t carry the predator with me anymore. I survived but I don’t define myself as a survivor. The trauma doesn’t define me.

You can’t clean with oven mitts on

“I was a slob,” I said, “I knew the drawer of the dresser was half open and I couldn’t close it. It must take nothing to close it, but I couldn’t. So it would be half-open for weeks, months.”

Mia’s younger sister, Norma, has been suffering Depression on and off for a while and occasionally locks herself in. Mia was planning to visit her parents and to stay at her sister’s place. “What should I do to help her?” she asked. She knows I have a clinical Depression and often asks advice from me for her sister. Mia is that kind of person who always tries to offer solutions to “problems,” to fix.

“I think I should tell her to stop taking medications,” she said.

“NOOOOO!” I said. “That’s the worst thing for a Depressed person!”

At one point, I felt so great and I stopped taking SSRI without consulting my shrink. (My shrink thought I had a hypomania episode.) I quickly fell into a state of Major Depression and didn’t go out of my apartment (except for bare necessities. I’m not agoraphobic. I just didn’t have the will to move.) During the three months, I was diagnosed with a variety of mood disorders and prescribed different medications, which made my condition much worse. Nothing stuck, well, except for the original straight forward SSRI. Eventually I came out of Depression organically and since then I’ve been on the same SSRI, currently with a minimal dosage.

“I take it for the rest of my life. I can’t risk having another episode,” I said. “It’s like you have a bad eye sight. You need to wear contact lenses just for functioning normally. Nobody tells you you shouldn’t wear contact lenses. You might fall into a manhole.”

“My sister doesn’t answer our calls, doesn’t respond to texts. We are sure she has read our messages… My elder sister thinks Norma is irresponsible. She doesn’t even care how our parents are doing..,” Mia said.

“It’s not that she won’t. I she can’t. Any contacts from others are threatening. When you have a migraine attack, any noises, any flash of lights would hurt badly. Phone calls and messages are like that. Especially messages to blame her or tell her to do something,” I explained. When I was depressed, every time I got a message, I felt like I heard a gun shot. Mia’s family bombards Norma with messages. “That’s the worst thing. I would feel like I want to cover myself with a blanket, in a fetal position,” I said.

“So what should we do?”

“Is she still seeing her psychiatrist?”

“I think she is,” Mia said.

“If so, just let her know you are there for her when she is ready to come out of the cave. Just send a message saying that you are thinking about her.”

Every time I talk to Mia about Depression, I am made to be aware how little “normal” people know how it feels. Many people around me have Depression with varying degree and we don’t have to explain to each other. We speak the same language of pain. It’s refreshing to realize it is not a universal state of being.

So I explained how I am when I am depressed.

“Norma is like that. She used to be very neat and tidy. But last time I visited her, her apartment was in a mess. She left dirty dishes in the kitchen sink. I thought she became lazy,” Mia said.

“It’s not that she is lazy. Depression is like having oven mitts on. It becomes very difficult to do anything with oven mitts on. Without them, it’s nothing to pick up a piece of scrap paper from the floor. With them, it takes tremendous time and energy just to do that. We see it and we know it’s there and we don’t have energy to pick it up. Then another piece of scrap falls on it, and another… Eventually we get buried in trash and can’t even move. That’s how Depression feels like.”

I don’t know if Mia understands. It’s damn difficult to clean with oven mitts on. So be compassionate to yourself. You are not lazy.

Do I Want to See Tomorrow?

The Diving Bell and the Butterfly is a cruel film.

If I should get totally paralyzed and lose my independence, do I want to live? If I have a choice, what would I do? I thought it was no brainer. I would certainly choose to end my life.

Then, my friend, Maria, was diagnosed with ALS. It is a cruel disease. She had been independent and lived alone. She didn’t have close family except for her elderly mother. She lost her mobility quickly and became dependent on friends. Within 6 months, she was admitted in a hospital and had to make a decision. She had to choose. If she chooses life prolonging measures, she would be bed-ridden for the rest of her life, which she wouldn’t know how long, and would have to depend on public assistance. She wouldn’t be able to move, eat, nor talk. She would have to wear a diaper, breathe through a respirator, be fed via a gastrostomy feeding tube… All of us, members of volunteer care team of her friends, thought it was no brainer. Nobody would be able to take care of her forever. One of her friends had a mother with ALS. She begged her mother to choose to live even in locked-in condition and she now regretted that. It’s cruel, she said.

Maria couldn’t make a choice for a long time. Eventually, she chose not to. She was admitted to a hospice and passed away peacefully in a couple of weeks. (So I was told.)

It’s no brainer, isn’t it?

It was until I heard a story about a nurse. I don’t remember where I heard or read, but it totally changed my perspective. The story was told by a husband of a nurse, who became paralyzed or immobile. When she was healthy, she had always told her family she would choose not to receive any life-prolonging measures.

She once happened to be at the scene of a serious accident. The injured person needed medical attention. As a nurse, she could tell he would surely be fully paralyzed, worse would stay in coma, or brain-damaged, and for a moment she hesitated to give an assistance to save the life. Of course, as a nurse, she provided necessary help and that person lived, with the predicted consequence. Since then she thought about her moment of choice again and again, and she concluded that she wouldn’t want to live in that condition.

So when it was her turn to choose, her husband and her children were sure that she would say no to life prolonging measures. She didn’t and they were surprised. They respected her choice and took care of her for the next several months.

Then, one day, finally she said it was enough.

What her husband said hit me hard. It’s not a question of if you want to live. It’s a question of if you want to see tomorrow. It’s not that she wanted to live in that state of being for the rest of her life. She just wanted to see tomorrow. She wanted to see her husband and her children smile tomorrow. She wanted to see the sun rise tomorrow.. She wanted to feel the air, she wanted smell the rain, she wanted to feel the warmth of sun, tomorrow.

Do I want to see tomorrow?

When I am seriously/clinically depressed, tomorrow does not exist. I am in a timeless state of pain. I become pain. I desperately search for the way to stop the pain, which lasts forever, because time stops when I am in major depression. We only are in now and here in hell. (That’s quite zen, isn’t it? ) So only thing I can think of is how to stop being myself. A depressed person doesn’t have tomorrow. That’s the tragedy.

So I constantly ask myself, ‘Do I want to see tomorrow?” And I am glad my answer was yes yesterday.

Yayoi Kusama and One in Hundred

My high school bestie, Suki, now a psychiatrist and professor of psychiatry at a medical school, told me about the mystery of schizophrenia prevalence. In any society at any time, there are certain percentage of schizophrenic people. Since onset of schizophrenia is usually in early ages, the patients have less chance of making families and leaving offsprings. So if the cause is genetic, there must be less and less population with that particular genetic traits. However, there always are certain percentage of schizophrenic people. She wonders if there could be some evolutionary reasons, or some roles for schizophrenic people to play for human societies to survive.

Some says one in three hundred, others one in hundred.

I went to see Yayoi Kusama’s outdoor exhibition with my friend. Her works were pop and super fun with colorful polka dots. We were excited and having fun taking pictures of strangely out of place objects in the New York Botanical Garden’s serene setting.

There was a small indoor exhibition of her earlier work, including sketches and drawings of the “pumpkins.” My friend was reading the description and examining the drawings with keen interest. I started to “hear” things. I couldn’t tell what the voices were talking about. It was like multiple voices talking at the same time in multiple frequencies. It’s like listening to a radio with bad reception while you are driving in a mountainous area. You think you hear a word, then you hear just noise. The voices were trying to directly permeate my brain. “I can’t stay here. I’ll wait outside,” I said to my friend and left the room.

So this could be what they are hearing. Kusama’s drawings were transmitting codes. Only those who happens to have a matched receiving device with the correct frequency setting could hear the message. I couldn’t decipher her message of polka dots, but it was surely unpleasant. Polka dots morphed into eyes and they were watching me.

That was when I knew I could have been one in hundred. My brain could receive the codes.

My friend came out of the exhibition room. He was not affected at all and didn’t understand why I needed to leave the room. His brain doesn’t receive the codes…

Since there was a stigma attached to mental illness in my old country, I didn’t know until recently that two of my cousins were schizophrenic and had been hospitalized for life. They had been hidden from my family history. I also have a sister-in-law, who is schizophrenic. That’s too many in one generation. (None of us have children.)

I am glad that I could refuse to hear the transmission and leave the room. I think I dodged the bullet of one in hundred.

(By the way, my friend’s father was bipolar and he gets deeply affected by Van Gogh’s exhibition. I don’t. I guess he can read Van Gogh’s bipolar codes and I can’t. It’s interesting.)

Is it Illness or Who I am

My high school bestie, Suki, who is now a psychiatrist and professor of psychiatry, once told me about her young patient, who killed himself while she was away for a conference. She told me that he was doing much better in the last session. “It’s because he had already made up his mind,” I said. “He made peace. Once somebody made up his mind, nobody can stop it and I guess for that person the life was too painful and if so, I can’t find a way to tell the person to live.”

“But it’s his illness that made him kill himself,” Suki said. And I have been thinking about what she said for a long time. I am not suicidal per se, but have been thinking about killing myself since I was 8 years old. The thought has never left me. It’s just how I am. I have been on SSRI for almost 30 years on and off and after the last bout of major depression, I accepted that I needed to be on meds for life just to live normally.

I explained my friend that when I was in major depression, there were no line of demarcation between who I was and the illness, ie. depression. I am not in pain. I become pain. It’s not that I want to kill myself. I just want the pain disappear. I just want to have peace from who I am.

Fortunately, when I am in major depression, I can’t initiate any major action. I just passively exist with minimal action for survival. So I am not suicidal. I am now stable and am quite happy about my life. I can not be sure but It could get better as you age.

Then I got Meniere’s Disease. Meniere’s Disease is an illness. It is a condition I have. It is definitely not who I am. When I have an acute episode, I scream in my mind, “Kill me now!” I am in tremendous pain and suffering and I want to have it stopped. But I don’t wish to die because I know once I recover after 12 to 24 hrs, I will be my usual self.

On the other hand, I’m not sure if I could survive another bout of major depression. After being depressive for half a century, I sometimes feel tired. I wonder if the day would come when I feel too tired to keep on going. But it would not be because of Meniere’s disease. It would be because who I am.

To younger suffers of major depression, I want to tell you it could get better. I didn’t imagine I could have this peaceful life when I was younger and tormented. It could get better.

Hope could be Toxic

Hope is an imperative if you live in Ukraine now. Hope is an imperative for our democracy. Hope that it will get better is an imperative for that tormented kid in the school.

However, in some case hope could be toxic. Hope leads to expectations. Expectation could lead to disappointment and sense of loss, again and again. It is actually cruel to give somebody bedridden with ALS a hope to be able to walk again, at least at this point of time when no definitive cure is known.

My friend, Maria, had been losing her functionality every day. Every morning she woke up to find she couldn’t do what she had been able to do the day before. She knew she would not walk again, but sometimes she just desperately grasped a flicker of hope and dreamed that she could dance again. She wore her favorite pair of shoes when in a wheelchair for rare occasion to get outside for fresh air. I didn’t have any words to console her at that time. Any suggestions of hope that it would get better were cruel even when she felt a little better than the day before.

Then I was diagnosed with Meniere’s Disease. I’m grateful that it was not ALS, but Meniere’s is a bitch from hell. Because of sudden and unpredictable debilitating violent attacks, which render the afflicted totally incapacitated for hours sometimes days, Meniere’s suffers loose their functionality. Three years ago, I started have violent attacks. The life I expected to have was no more because I couldn’t do what I had been able to do. I sought for “cures” one after another. Every time I tried something, the violent attacks seemed to subside. And I had a hope. Then Boom. Another attack and I found myself lying on a bathroom floor violently vomiting. I had to cancel my plans and I was afraid to leave home. After a year of turmoil, I found a trigger, or so I thought, and I was in remission. I thought I was cured!

After two years, it came back. The moment it hit me, I knew I should change my mindset. No expectation, just live now. Regardless whatever happens tomorrow, I am living with this condition now and this is my state of being. It is the only reality. It doesn’t mean I don’t make any effort to control Meniere’s disease. I’ve been working much harder and am much more focused to change my life style which might have caused Meniere’s Disease. But I’m mindful not to expect anything. Expectation is about something in the future, which might or might not exist. I don’t want to be disappointed just because I lose what I might not have anyway.

I have been feeling much better this week with less frequent attacks and less severity, but I don’t expect I’ll be better tomorrow and will be able to travel in May. I don’t know how I will feel tomorrow. Yes, I am human and every morning upon waking up, I hope and hope my Meninere’s disease miraculously disappears. Then the tell-tale sign of tinnitus or vertigo comes back to tell me otherwise.

So don’t tell me it will get better. You don’t know and I don’t know. If you can’t tolerate witnessing my suffering, just hold your discomfort and say “I’m sorry. It must suck to have that condition.”

If I feel good, I enjoy the day. I live one day at a time. And basically it is how everyone should live. One day at a time.