Changing My State of Being

If you’ve ever lived with an incurable, debilitating illness, you’ve probably wished for a miracle. It’s deeply human to hope for a magical cure. I can’t count how many mornings I opened my eyes hoping the tinnitus—the telltale sign that my symptoms were still there—had somehow disappeared overnight.

I developed Ménière’s disease while I was working out of state. During one attack, I lay curled up in the fetal position in a cold motel bathtub, vomiting, gagging, and shaking, wondering whether I would be able to go to work the next morning. I was afraid to get on a plane to fly home. Then I became afraid to leave home at all.

Several possible futures for my life ended in that motel bathtub.

The highly functional, reliable powerhouse I had always been was gone. If an attack came, I could become a puddle of vomit on a random sidewalk or park path.

Ménière’s disease is considered an incurable, disabling condition. It isn’t life-threatening, but it completely changed my state of being. There were so many things I could no longer do. I fought against it and suffered, grieving the loss of the life and abilities I had taken for granted.

Then, almost magically, it disappeared in less than a year.

Ménière’s disease is notoriously unpredictable. For the next two years, I was active and functional again. I made plans for a new career and new adventures.

Then it came back with a vengeance.

The attacks became so frequent and severe that I was essentially homebound and often bedridden. But something had changed in me. This time, I didn’t mourn the life I thought I should have had. This was simply the reality of the present moment. My task wasn’t to fight reality—it was to adjust my priorities.

I accepted a different state of being.

By then, I had already learned that controlling Ménière’s disease directly was almost impossible.

I also had diabetes and was taking medication to lower my blood glucose. Intuitively, I suspected the medication might be a major trigger for my Ménière’s attacks. If I wanted to stop taking the medication, I would have to lower my blood glucose through diet and exercise instead.

I couldn’t control Ménière’s disease, but I could control my diabetes.

While I was homebound, I immersed myself in learning. I read book after book about both conditions and adopted a very strict diet. Around that time, a friend sent me Becoming Supernatural. Although I didn’t believe in spontaneous healing, much of what Joe Dispenza wrote resonated with me. I began practicing meditation, setting clear intentions, and paying attention to my inner state rather than focusing only on my symptoms.

One morning, after a moderate vertigo attack, A single word arose in my mind:

“Run.”

Normally, I would have stayed in bed all day. Since I couldn’t physically run, I interpreted it the only way I could. I got up, left my apartment, and walked to a nearby park.

When I returned home, a friend called to say they had unexpectedly arrived at Penn Station and wondered if I could meet them. It was the friend who had sent me Joe Dispenza’s book.

Had I stayed in bed, as I normally would have, I never could have seen them that day.

I don’t know where that inner message came from. I only know that I listened.

Over the following year, my blood glucose dropped into the pre-diabetic range without medication. At the same time, my Ménière’s attacks became less frequent and eventually became rare.

Was it the diet? The meditation? The change in my nervous system? The intention? The reduction in blood glucose? A combination of all of them?

I honestly don’t know.

What I do know is that my state of being changed.

I am not cured. I still have very mild Ménière’s symptoms that remind me to pay attention. I still maintain a disciplined diet and regular exercise to keep my blood glucose under control.

But today, I am functional.

That is my current state of being.

Touch: Your Brain’s Interpretation

Even though the sensory receptors in the skin are mechanoreceptors, it is your brain that interprets the signals they send. Since the brain remembers past experiences and the emotions associated with them, touch is never merely a  touch. Even the same mechanical touch can be felt differently—it can be loving, caring, comforting, or healing; sensual or sexual; cold, abusive or invasive. Even when you think your touch is neutral, it’s up to the receiver’s brain to interpret it.

When I was in my late thirties, I went through infertility treatment. To check if my fallopian tubes were open, I underwent a very uncomfortable test. The pressure I felt inside my body was so invasive that I instinctively contracted my entire body, bracing myself. Then the technician’s assistant gently placed her hand on my arm. I melted. Her touch was neutral, and I don’t think she was consciously trying to comfort me. I felt it came from her spontaneous empathy. 

I have Meniere’s disease. One day, I had a Meniere’s attack in a gross anatomy lab and had to lie on a cold linoleum floor for some time, clutching a barf bag. I told everybody that nothing could be done to relieve my suffering and asked them to keep me safe and leave me alone until the symptoms resolved. I threw up in the bag and was hyperventilating in a fetal position. Some people can’t tolerate witnessing suffering without doing anything; it might make them feel powerless. A few of them placed their hands on me, perhaps to soothe or heal. I just had to endure the unwanted touch. They were mechanically the same kind of touch, but my brain interpreted them differently. One was comforting and the other was annoying.

As a child, I experienced improper touches, which were a violation of boundaries. This experience made me sensitive to the intent behind a touch. I don’t remember receiving loving touches from adults in my family during my childhood. My nervous system used to react to every touch as if it were a danger. Sometimes, a touch triggered tremendous rage, while other times, it made me feel nauseous. It took me a long time to learn to discern a safe touch from an unwanted one. I’ve learned to set boundaries and to choose how to respond, not just to react. 

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